Stay Up Late Ambassadors write to the Prime Minister

At this week’s Zoom meeting of the Stay Up Late Ambassadors we had a guest speaker from My Life My Choice. They are self advocacy organisation run by and for people with learning disabilities based in Oxford. Ben McCay who spoke to us is one of their trustees. You can find out more about them here.

Ben talked to us about some of the great things they’ve been doing to keep people in touch with one another during the coronavirus pandemic. He also told us a little bit about the history of My Life My Choice and why they were set up and we also discussed the importance of the #NoBedtimes campaign.

The conversation then moved on to how confused everyone felt about the government’s official information on coronavirus and our Ambassadors decided that they needed to go write to the top on this and complain to the Prime Minister.

You can find a copy of the letter we have sent here. We’ll let you know what response we get!

The Rt. Honourable Boris Johnson MP, Prime Minister, 10 Downing Street, London SW1A 2AA

Dear Prime Minister,

We are writing as Ambassadors for the learning disability charity Stay Up Late. The charity is based in Brighton but campaigns across the country. All of us have a learning disability and/or autism.

We have found the Government’s information on the Coronavirus to be very confusing. We know that the advice has to change from time to time as the situation changes. But unless the information is made available in Easy Read format it just adds to the confusion.

We are calling on the Government to make sure that all future information relating to the Coronavirus is made available in Easy Read as well as other formats.

We have also found the Government press conferences hard to follow. We believe that there should be either a video summary or an Easy Read guide summarising the main points from these press conferences immediately afterwards.

Yours sincerely,

Rohan Lowe, Nicole Bird, Phillip Dyer, Sophie Hinksman, Richard Horrigan, Jason O’Neill, Daniel Randall-Nason, Simon Richards, Emily Shanahan, Victoria Smith, Ian Swannick, Fiifi Tetteh, Andrew Walker

Stay Up Late Ambassadors

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