A draft manifesto for change

Following my last post ’10 reasons why people with learning disabilities don’t have great lives’ which looked at everything that came out of our conference workshops last year I’ve now tried to condense everything that came out in to our ‘Manifesto for Change’.

This is a draft as we really want people to comment on it and make suggestions. It’s also deliberately short as we want to get this out there as much as possible so the idea is that we want to be able to fit it on to a tea mug.

Stay Up Late’s manifesto for change

For people with learning disabilities to be able to lead the lives they really want this is what we think needs to change.

We should be able to:

–       Choose our staff

–       Have happy staff who love their work

–       Choose our friends and have help to socialise if we need it

–       Choose where we live

–       Have relationships and a sex life

–       Choose our bedtime

–       Choose how we spend our time

–       Be welcome and active in our community

–       Not be referred to in negative ways in the media

That’s it! Let us know what you think

Paul

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Recent Comments

  • Sleggsy

    Monday, 11 Aug, 2014

    It’s a great list Paul. Thanks.
    The ‘Making a Difference’ Group in Croydon have been talking a lot about choosing staff who are happy and love their work. We think that this should start right from when staff are being found for jobs. Staff and supporters need to understand the importance of working hard, but as they do so, they should smile, have a laugh and find creative ways of bringing joy into people’s lives. These things don’t cost money, but they make such a difference to people’s lives. So employers and managers need to make staff aware of the importance of working in a way that spreads happiness and adds greater enjoyment to whatever people are doing.
    Keep up the great work,
    Sleggsy

    Reply
  • lrb17

    Saturday, 09 Aug, 2014

    The idea that the ppl I work with can have A GREAT LIFE is revolutionary in itself- the assumption from so-called support services seems to be that if they are getting by, that’s enough and as good as it gets. Also the general attitude in society seems to be that ppl with any disability shouldn’t have A GREAT LIFE- it’s somehow wrong for ppl with disabilities to have nice things and the things we value as a society. Buzz words in service provision are things like ‘risk assessment’ and ‘personalisation’ and ‘support needs’- these are about insulating from the perceived bad effects, vulnerabilities that come with a learning disability.
    When my baby was born with DS, the midwife said ‘I hope he has a nice life’. She was trying to be nice, but I wanted to retort, ‘oh he is going to have so much more than that’. He’s going to have A GREAT LIFE.
    My manifesto on a mug would be: Go for it mate, let’s make our lives GREAT!

    Reply

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