Grassroots charity promoting the right for people with learning disabilities to have a choice about how they live their lives

Chester Voluntary Action – campaigning podcast

12
Mar
2017

We were delighted to be asked by Chester Voluntary Action to be involved in their first podcast ‘Disability Focus’ where they were concentrating on the issue of the Stay Up Late campaign. We love being involved in things like this and also are always excited to hear how people are campaigning in their local areas. However, it’s also tinged with a sense of total frustration at hearing the stories which you’ll hear in the podcast.

that's what we do, it's routine and we have to get home for meds because of night staff and things like that

Stories of people's rights being denied in casual ways

How dancers are helped in to their coats by support workers while they’re still on the dance floor

How people with learning disabilities have to seek the permission of their support workers before organising a night out

People being tricked in to thinking the night is over by their ‘ever so clever’ carer.

These issues, as we know, aren’t peculiar to the Cheshire area – and we’ve heard stories like this for years.
One that sticks out is the heart breaking story of a performer being taken home before he had the opportunity to perform the dance piece he’d been working on for months, or the musician who was taken off the stage mid performance by their support worker. It’s actually hard to find words to describe the levels of disrespect this shows for people without coming over all sweary!

Sometimes these support workers think they're more than what they actually are and they think they rule you instead of you rule them.

What's going on?

I’ve transcribed some of the interviews in the podcast, and you can hear the whole episode by following the link below. However, I think Ian (featured in the article) sums it up by describing the impact on performers and clubbers alike:

…people need to get back because of support staff and some people get a bit upset because it’s a big part of their lives like

Too right Ian, it might well be a big part of their lives, I know going out and spending time with my mates is a big part of my life and something I look forward to.
It just seems that there’s a culture where support staff don’t take any time to consider the impact of their actions on the people they support, the impact on their self-esteem and also mental health.

Presenter - ...what would be your ideal time to come home at?

Michael - On a Friday half past twelve, what's wrong with that?

We’ve been banging on about this for ages (as you know) and sometimes it can feel overwhelming to know where to start with all the deprivation of rights for people with learning disabilities to just have a social life but we’ve got a plan forming in our heads!

It also brought to mind this blogpost we wrote in 2015 - 'The 6 Types of Support Worker' which actually upset a few people, maybe the recognised they weren't our ideal 'Type 5'!

Listen to the full podcast from Chester Voluntary Action to here:

If we ask the service users "would they like to go to [an event]?" the first thing that will come out of their mouth is "I'll have to ask me staff".

Why should they have to ask their staff? If they want to go their staff should be finding ways to make them go to make it happen for them to give them the chances.

We've got a plan!

We've said this before "We've got a plan" and we’re also not even quite sure how we’re going to fund this plan yet but we’re going to make it happen one way or another.

This plan is to have a series of one-day events which you could call a conference but they’re going to be a practical day of creating a co-produced plan to make some action happen. We’ll be inviting people with learning disabilities, advocates, support workers, managers and commissioners and we will focus on making something happen.

So watch this space – something is going to happen!

Here’s a transcript of the interviews in the podcast and I challenge you to not get angry! (Click on the image to see a PDF file)

Chester Voluntary Action

In the clip they chose to play Farty Animals by Heavy Load and it made me think of this Youtube clip where me and Michael are have a debate about the name of the song, whilst enjoying the sunshine at Wychwood Festival. It always makes me laugh, and while we're feeling pretty angry here at Stay Up Late after listening to this great podcast we're always reminded to carry on our work in good humour. As John Lydon said after all "Anger is an energy!"

Thank you to ChesterVoluntary Action for recording this podcast and we're looking forward to hearing more.